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Welcome To The Lymebrary
The Lymebrary is a project of the Lyme Disease Digital Library. We are committed to maintaining a public library of quality information on Lyme and other tick-borne diseases, and we are willing to employ multiple methods to provide this information to you.
The Lymebrary is an online, searchable database of links to Internet pages and online documents. You can read more on the About Us page. The Lyme Quote of the Week link is on the right to connect you to quotes on the topic of tick-borne diseases from many points of view. We hope it will inform, amuse, intrigue, or inspire you. The Lyme Disease Digital Library blog, also on the right, will periodically update you with news on tick-borne disease research and tips on using the Lymebrary.
The Subscriber pages will enable you to look for articles in our archive. You will need to register, but registration is free. You may also search the offsite portion of the archive at http://del.icio.us/lymebrarian
Don’t see what you want? Please Contact Us and we will see what we can do to locate what you are looking for.
Disclaimer: The Lyme Disease Digital Library provides this material to you for your information only. It is not comprehensive, nor is it to be considered medical advice. The library staff is not qualified to diagnose illness or recommend treatment. Please consult with your licensed healthcare professional for specific situations.
Last update: May 14, 2010
Lymebrary Subscriber Services
The Lymebrary has a lot of materials that you can borrow or link to. We only ask that you not copy or distribute more than just a brief quote to others, as we would like to honor the publishers’ copyrights. Not only is it the law, but it is an incentive for researchers and journals to keep publishing.
Many of the Internet links are PDF files, which can be read with Adobe Reader, a free download. If you do not have Adobe Reader, you can get it by clicking HERE
HOW TO SEARCH
Click on the search box and type in a word from the title of the article, an author last name or search term, and click SEARCH. You will come up with article titles and additional search terms, or tags. Clicking on the title will bring up infomration about that article and the link to it. Clicking on the tags will bring up all articles with that tag.
If you are looking for an article or book that does not have a link in our database, we can look into getting the information to you, just use the Contact Us page to email the librarian.
To view another version of the offsite articles archive, go to http://del.icio.us/lymebrarian
About The Lymebrary
The Lymebrary sprang from a concern to gather documents of note about tick-borne diseases into one searchable archive, and make it available to the patient, as well as to caregivers, healthcare providers, researchers, legal professionals, and advocates. Our hope is that by putting quality information in one place, reasonable people can make reasonable decisions about tick-borne disease.
This project is the result of over two years of planning and development, and yet the project has barely begun. The work of the Lymebrary is supported by a board of directors, an advisory board, IT professionals and a professional librarian, adhering to collection and service standards that are common to academic, medical, and public libraries.
Mission Statement.
The goal of the Lyme Disease Digital Library is to create and maintain a library of quality information on Lyme disease (borreliosis) and other tick-borne illnesses for easy retrieval by the public.
Philosophy.
We of the Lyme Disease Digital Library believe that well-informed users can and should make their own best decisions about Lyme disease, and we will employ multiple methods to assist users with their information needs.
About the Collection.
Lyme disease is an emerging infectious disease, and research is still unfolding. Different authors may disagree on fundamental issues. Rather than supply only one point of view, the Lymebrary has endeavored to use objective selection criteria common to public and academic libraries. We have attempted to gather information of note from wherever the source and offer it without editorial comment, understanding that it is the right of people to access all points of view and make up their own minds.
Scope of the Collection.
What is often referred to as “Lyme disease” may include many different bacteria, viruses, amoebae, and other microscopic organisms which produce illness in the human host. Although it is known that co-infections to Lyme exist, it is often difficult to sort out which symptoms are caused by which organism. We have relied on the words of the authors to define Lyme disease as they see fit.
While we acknowledge that ticks and people are not the only hosts for these pathogens, we have chosen to limit this collection to tick-borne pathogens and their impact on humans. The collection currently emphasizes aspects of tick-borne disease in North America, although that may expand in the future, particularly knowing that the travels of infected birds, animals, and people may commingle these pathogens around the world. Subjects include:
• History of the discovery of tick-borne disease
• Etiology, or cause of the disease
• Epidemiology, or spread of the disease
• Symptoms
• Diagnosis
• Treatment
• Prevention
A further breakdown of these topics can be found on the Search page.
Materials Selection Criteria.
1.) Accuracy
• Facts are verifiable or common knowledge
• Argument is persuasive and logical, builds on prior knowledge; conclusions proceed logically from the evidence and discussion
• Impartiality – is there bias, and is that bias balanced by other material in the collection
2.) Authority
• Author is recognized in the field
• Document has been published in peer-review
• Document cited by others of note
• Document’s citations include others of note
• If not peer-reviewed, appropriate peers in the field can vouch for the document’s scholarship
3.) Relevance
• Helpful to users: primarily patients, secondarily caregivers, researchers, professionals, or advocates
• Timely: recently requested, or will help answer current or frequent questions in the field
• Significant portion of the document provides needed information
4.) Uniqueness
• Fulfills a missing aspect of the subject matter of the collection
• Scope: explores a topic deeply, or is a broad overview that is needed
• Bolsters the arguments of other documents
• Presents new or recent data
• Format presents information in a new way
5.) Readability
• Would be understood by the patient community
• Document is legible, logical, and grammatically sound
• The copy under consideration is the most recent update, or most graphically pleasing format, and contains all adjunct information
6.) Availability
• Document is affordable when compared to similar documents
• License can be secured from the copyright owner or licensing agent
Last update: May 20, 2008
Board of Trustees
Constance “Happy” Dickey, RN is from Hampden, Maine. She was employed at Eastern Maine Medical Center in Bangor for 25 years. Since 1999 she has had a special interest in Lyme and related diseases and has spent much time and energy on research of tick borne diseases. Happy was on the Board of Directors of ILADS from 2001-2007 and held the position of Membership Chairperson. In Maine, she facilitates two live support groups and moderates an online information and support group for Maine patients. She is an advocate for patients and assists with educational programs for medical personnel and the public.
Sharon Hawkes, MLIS has been involved in Lyme disease advocacy since 2001 in Ridgefield, CT, when Lyme disease first interrupted a 25-year career in the arts. Transitioning to the library field, she is a Beta Phi Mu graduate of Syracuse University, with a Medical Library Association certificate in consumer health, and coursework in management, information organization, collection development, and digital libraries. She is the Executive Director of the Lenox Library Association in Massachusetts.
Beatrice M. Szantyr, MD, a fellow of the American Academy of Pediatrics and member of the American College of Physicians, is board certified in both internal medicine and pediatrics. She has lectured on Lyme Disease and Related Tick-borne Disorders to professional and community groups throughout New England. She currently participates on the State of Maine Vector-borne Disease Work Group. Among her professional memberships are the Maine Medical Association and the International Lyme and Associated Diseases Society. Dr. Szantyr has given testimony before the State of Maine Legislature concerning Lyme Disease in the State of Maine.
Advisory Board
Robert Bransfield, MD is associate director of psychiatry at Riverview Medical Center in Red Bank, New Jersey. He has published on Lyme disease as it applies to psychiatry for over a decade, including in prestigious medical journals such as the Journal of the American Medical Association and the New England Journal of Medicine.
Gary Maggi, RN, MLS is a medical librarian on the adjunct faculty of Syracuse University, and former Associate Dean of Knowledge Services at St. Joseph’s Hospital Health Center and School of Nursing in Syracuse, NY. He is currently serving as a medical librarian in Croatia.
Project Advisory
Jian Qin, PhD is an Associate Professor in Library and Information Science at Syracuse University, specializing in the organization of information and digital librarianship. She is widely published in peer-reviewed information science journals, and frequently lectures internationally. Her research has been funded by the Institute for Scientific Information, OCLC, and Syracuse University.
Concerning Copyright Restrictions
The copyright law of the United States (Title 17, United States Code) governs the making of photocopies or other reproductions of copyrighted material.
Under certain conditions specified in the law, libraries and archives are authorized to furnish a photocopy or other reproduction. One of these specified conditions is that the photocopy or reproduction is not to be “used for any purpose other than private study, scholarship, or research.” If a user makes a request for, or later uses, a photocopy or reproduction for purposes in excess of “fair use,” that user may be liable for copyright infringement.
This institution reserves the right to refuse to accept a copying order if, in its judgment, fulfillment of the order would involve violation of copyright law.
NOTE: Violating copyright law may result in suspension or termination of borrowing, accessing or requesting privileges.